Well I've made it to my 2nd goal - 6 months post transplant! Things couldn't be going any better either! No signs of GVHD, labs are good, no significant symptoms and my hair is really starting to grow in. My biggest complaint is that I am still tired a lot. I can be doing just normal daily stuff and get exhausted in no time. The past couple of days have been pretty bad, but I know eventually I will bounce back. I got another bone marrow biopsy done today and it went really good. I love Julie, the NP that does them at KU. I wish I could take her with me to DC.
I contacted Johns Hopkins and Dr. Brodsky is willing to accept me as a patient. I'm very excited about being able to get treated at one of the best facilities in the nation. I just hope that he is personable and has good bedside manner. I have spoken to his nurse a couple of times and she seems very "to the point." I think I am going to like that about her. So if anyone knows anything about Dr. Brodsky, please let me know! You can contact me through a private message if you want at andrya79@hotmail.com or andrya.deghelder@gmail.com.
Kellan is really trying hard to crawl. We have finally got him doing the army crawl really well. He is moving around on his feet well too. He can hold on to the table and reach down to grab a toy. He can move around the table by himself. He is just growing up so fast!
It looks like my move is being postponed for about a week. Our household goods can't be delivered until January 31st, so we want to make sure the house is mostly unpacked before I get there. I don't want to be around all the dust and stuff from unpacking.
Please spread the word about donations and any ideas for fundraising. I sent in my first reimbursement forms this weekend and our funds don't cover it all. In this tough economy, I realize it is hard to spare anything, but even $5 covers a month of a prescription.
Thanks for everyone for taking the time to read and follow my blog. I have heard so many people tell me about how it makes them feel and that only makes me feel that much stronger. Even though I am doing well, I still have a long way to go for full recovery and your personal responses really make a difference.
Thank you for keeping me and my family in your prayers and thoughts.
Also, if you click on +1 above that makes my blog show up on google as a recommendation. This is very helpful for other aplastic anemia patients to find inspiring stories and information. So each time you read my blog, click it!
ReplyDeletehi andrya, glad to hear your doing well. i've thought of going to dr. brodsky as well, but for now, i'm sticking with the nih team. my treatment is going well; i'm responding. i got your card; thank you. let me know when you're fully adjusted in the MD area, we'll get a cup of coffee or lunch.
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